Here you'll find stories from those living with Hirschsprung's disease in their life, news about about Hirschsprung's disease UK is doing, episodes of Tom's Hirschsprung's Podcast and more.
We’ve created Hirschsprung’s Disease UK urgency and enterocolitis alert cards to support individuals and families living with Hirschsprung’s disease.
Continue reading
Hannah is running the London Marathon to support the start of Hirschsprung’s Disease UK. As a founder and entrepreneur, Hannah has worked closely with Georgina for many years and has seen first-hand what life can look like for families navigating Hirschsprung’s disease. That experience is what led her to take on this challenge.
Continue reading
Georgina and Aaron sat down for an interview with S4C to tell them all about their son Ffredi's diagnosis story, adjusting to life with Hirschsprung's disease, and why they felt it was so important to create the hirschsprungsdisease.co.uk website.
Continue reading