Melissa Jones runs the very popular Facebook page 'Hirschsprung's Disease family support UK'.
Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story. We also chat about the inspiration behind the Facebook group, how and why it was set up, as well as hopes for the group in the future.
To join the group search 'Hirschsprung's Disease family support UK' on Facebook.
Follow Tom's Hirschsprung's Podcast @Toms_hirschsprungs_podcast
Listen to the episode here: