WE’RE OFFICIALLY A CHARITY! 🎉

A new website is coming very soon!

Hirschsprung’s Disease UK is now a registered charity in England and Wales.

What started with a website, built because I couldn’t find the information and support I needed when my son Ffredi was diagnosed with Hirschsprung’s disease, has grown into something much bigger.

Over the last couple of years, I’ve spoken to so many families who have shared similar experiences – searching for information, trying to find other parents who understand, navigating huge decisions and difficult periods, and often feeling like there should simply be more support available.

That’s what we want HDUK to change.

Becoming a registered charity gives us the foundations to grow what we’ve already started and build something that can properly support the Hirschsprung’s community across the UK.

Our work will focus on:

💚 Information and resources for people affected by Hirschsprung’s disease
💚 Peer support and connection
💚 Education and awareness
💚 Working with healthcare professionals and services to improve information and support

There is SO much we want to do and this really does feel like the beginning.

A huge thank you to every family who has spoken to us, completed a survey, shared their experience, offered help or simply followed along so far.

And especially to the brilliant people who have agreed to help me turn an idea into an actual charity - the wonderful team working behind the scenes!

Hirschsprung’s Disease UK is officially here. 💚

Registered Charity in England and Wales: 1219498

You can contact us in the meantime at info@hirschsprungsdisease.co.uk