Living with Hirschsprung’s Disease

Introducing HDUK Urgency & Enterocolitis Alert Cards

We’ve created Hirschsprung’s Disease UK urgency and enterocolitis alert cards to support individuals and families living with Hirschsprung’s disease.

Hannah is running London Marathon!

Hannah is running the London Marathon to support the start of Hirschsprung’s Disease UK. As a founder and entrepreneur, Hannah has worked closely with Georgina for many years and has seen first-hand what life can look like for families navigating Hirschsprung’s disease. That experience is what led her to take on this challenge.

On the Podcast: Leanne Constable

This week Tom delve's into 'Parkers Journey' with Leanne, the wonderful person behind the Instagram account 'parkersjourney08'.

On the Podcast: West End Starr Jamie Birkett

Actor and West End star Jamie Birkett chats to Tom about her son and husbands journey with Hirschsprung's Disease as well as her own personal challenges.

On the Podcast: Karen Dick - Hirschsprung's Nurse

Hirschsprung's nurse specialist Karen, talks about her decade plus experience as a nurse specialising in Hirschsprung's disease.

On the Podcast: Samuel Bell

The founder of 'Samuel's Smile' joins Tom to talk about his very rare form of Hirschsprung's Disease as well as his experiences of fatherhood.

On the Podcast: Louise

On this episode of the show, Tom discusses a unique set of challenges with Louise about her 12 year old son, Jacob.

On the Podcast: Rachel @gustymum

Rachel joins Tom to discuss her unique journey through Hirschsprung's disease and motherhood.

On the Podcast: Fred Gray

Actor, Director and RADA Alumni, Fred Gray discusses his experiences with Total Colonic Hirschsprung's as well as his talking about his son and father who also have HD.

On the Podcast: Louise & Andrew Shapton

In this episode, Tom chats with one of the co-founders of Tom's Hirschsprung's Podcast and her father.

On the Podcast: Gemma Boggs

Tom welcomes Gemma to talk about her daughters Hirschsprung's diagnosis and the challenges that Dorothy has overcome.

Welcome to our Stories!